How 2017 was the Year Full of Impossible Things

As I mentioned last week, 2017 was full of impossible things. Here are 10 examples + links to accompanying photos or blog posts: I spent a whole day at Panera. Twice actually. Two friends made this happen. I wrote about love. Not just one week, but four. I shared my story and my fears related to the disability factor. I …

Perfectly Abnormal, an interview with Chris Morris

1. Tell us a little about yourself. I’ve been married to my wife Barbara now for almost as long as I lived the unmarried life, and every year is an adventure. Together, we’re raising four kids, three boys and our daughter who’s epileptic and high-functioning autistic. Plus, I have my own seizure disorder. So, it doesn’t often feel like we …

A Parent’s Perspective: Why My Son Doesn’t Need Fixing

More than a year ago I “met” today’s guest writer — Jennifer Fecowycz. She emailed me after finding my blog and shared her connection to Arthrogryposis . Read on for more of her story. This is still part of the dialogue on disabilities and cultural assumptions. ******* 1. Briefly share your story. My name is Jen and I’m mom to Oscar, who is 2 years old …

When I Felt Different, part three

Surgery of any kind isn’t fun for anyone, especially a third grader. I thought I was going to a normal check-up with my orthopedist. I was never a fan of those appointments. Then he said, “It’s time for your back surgery. We can’t wait any longer.” (You can read more about the story here.) That was a moment I wanted to …

The Me Before You Dilemma: What Makes Life Worth Living

When I first bought the Me Before You book, I didn’t know it came with controversy. I didn’t realize I was entering a story full of dilemma and debate centered around an unnamed question: Is life in a wheelchair worth living? The movie version of Me Before You premiered at the beginning of June and I found a firestorm on social media. I …

Breaking Through Barriers: When Expectations Affect Daily Life

“Can you hold onto both arms?” “I got you.” “Ok, I am trying to get there. I just can’t move as fast.” “It’s okay.” “I don’t like feeling different.” I had this conversation with my mom earlier today, but you would have heard something similar in our house other days recently. I’ve been facing a new physical limitation as I …

Breaking Through Barriers: Redefining Normal

Normal. How do you even begin to define “normal”? Culture teaches us what normal can mean, what normal should look like, and how to respond to what isn’t considered normal. What is normal, really? This is a question I wrestle with, something I ask myself again and again. I have to understand the way I define normal because my definition most …