The “This is how I…” series continues. In each video, I give you a behind the scenes look into my daily life with Arthrogryposis. I have a spot in my room where I can reach my drinks without calling for assistance every time. We line them up and make...
this is how I…take a walk. In this first video of the blog series, I talk about how I enjoy time outdoors. A physical disability means I need mobility equipment (my power wheelchair) and a side-kick (like a friend) to come along for whatever fun I...
After I wrote about the top 10 misconceptions, I knew we would need to explore a few of them further. The list came from a collection of voices. I asked for others to share their experiences and so many answers were the same. One answer I heard repeated connects to...
“Come home tomorrow! We’re going to get 6-9 inches and we can play in the snow. I need a snow buddy. It will be fun!” My mom was on the phone with one of my brothers. She relayed my message to him. As I spoke the spontaneous idea out loud, I felt my...
More than a year ago I “met” today’s guest writer — Jennifer Fecowycz. She emailed me after finding my blog and shared her connection to Arthrogryposis . Read on for more of her story. This is still part of the dialogue on disabilities and...