This isn’t a story about what we did or where we went. This is a real-life story about friends — when they cared, how they helped in tangible ways, and what that meant. I went to a baseball game earlier in the month. If you don’t know me, you might...
Caregiving isn’t just about me asking someone to help me with a specific task and then we do it. That is part of it and that is how caregiving begins. But caregiving done well goes further. At the end of June, I wrote about the controversial book, Me Before You....
When I first bought the Me Before You book, I didn’t know it came with controversy. I didn’t realize I was entering a story full of dilemma and debate centered around an unnamed question: Is life in a wheelchair worth living? The movie version of Me Before...
Facing my limits isn’t something new for me. However, life with a physical disability looks and feels different as an adult in a way. I’m not hopping on a school bus every day. I’m not interacting with many of the same people I knew in childhood....
I watched our kids playing duck duck goose outside and running around. I couldn’t fully participate, but I held things for people. One boy gave me his toy to keep safe. But part of me wanted to do more than smile, laugh, and cheer on everyone else. I wanted to...
Last week we started this series by asking and answering the question: “What is normal?” My normal is this — I am limited. And I need help. All the time. The list is rather long if I were to name everything, but here is a sampling of tasks I...